A Year of HOPE

2018 has been a truly wonderful year for U.R. Our Hope. We have grown and added far more families than ever to our organization. We’ve built new partnerships, made headway in the diagnostic journey for many, found a diagnosis for others, and our medical liaison was recognized by the American Physical Therapy Association (APTA). New…


September Meeting: Concerts for a Cause

Join us at Pinballz Kingdom in Buda for our September Family Meeting and Event Saturday, September 10, 2016 from 5pm to 8pm. This event is brought to us by Concerts for A Cause! * Live Music by Vanessa Lively and Bret Coats Music * Arcade Games for all * Craft Beer for the grown-ups * FREE games/activities for the kids *…


Rare Disease Day Cup of Hope Chili Cook-off!

Rare Disease Day Cup of Hope Chili Cook-off! Join us for chili, beer and music at our inaugural Cup of Hope Chili Cook-off at Central Texas Speedway in Kyle, TX!  We will have fun and games for the whole family. Central Texas Speedway also offers go-kart races at $20 per race and we will have a…