Support U.R. Our Hope at the Austin Marathon
CALLING ALL RUNNERS!!
We are THRILLED to have been selected as an official charity for Austin Marathon Gives in the 2024 race. Lace up those sneakers and get ready to run for Team U.R. Our Hope Sunday, February 18, 2024.
Running not your thing? Totally understand! You can still support by donating to our campaign, setting up your own fundraising page, or joining our volunteer team!
RACE – Choose your distance (Marathon, Half, 5K) and register now at youraustinmarathon.com – Select U R Our Hope as your Team!
DONATE – Donate to our campaign or set up your own fundraising page. Earn a FREE race entry based on the amount you raise! givengain.com/cc/uroh/
VOLUNTEER – Join our volunteer team as we support and cheer on runners on race day! forms.gle/hs9qjjJ3C7wAaL528
U.R. Our Hope assists individuals and their families on the journey to diagnosis and helps them navigate the healthcare system with a rare diagnosis. With over 8,000 known rare diagnoses, it can take up to 7 years to receive an official diagnosis. We help reduce that time by connecting families to resources, specialists, and most importantly a community to guide them on their diagnostic journey.
What we do
U.R. Our Hope is one of the only organizations in the country assisting patients on the journey to diagnosis and continues to support them beyond. We assist families in finding answers and critical treatment plans.
- Gas/Meal Cards – we provide gas/meal gift cards to those traveling for medical visits to see doctors specialized in their conditions or best fit their needs
- Research Programs – we help to enroll individuals in some of the nation’s top research programs to find a diagnosis, such as the NIH Undiagnosed Diseases Program and TGEN
- Crisis Support – during hospitalization or times of crisis we provide respite, meals, emergency lodging, and support for burial costs
- Family Meetings – local families gather each month to connect and spend time with others to network, share resources, and simply offer support to others who share the journey
We have over 75 active families and continue receiving referrals daily. Our families are concentrated in Central Texas, but our reach extends across 10 different states and at least 5 other countries. We have helped these families find a diagnosis or make significant progress in their diagnostic journey.