MONTHLY MEETINGS

Monthly meetings allow us to provide face-to-face support for families by gathering to share research and resources. We help families get out in to the community with a supportive group who understands the journey.

UPCOMING EVENTS

U.R. Our Hope hosts community events to raise awareness for those with Undiagnosed and Rare Conditions. We are always looking for new locations and local businesses to partner with to support our families.

ABOUT US

Learn more about our organization and the families we help. We are grateful to our local media and online publications who support our mission and share the stories of so many.
7000

RARE DISEASES

30000000

AMERICANS AFFECTED

$ 5000+

AVG COST GENETIC TESTING

7

YEARS TO DIAGNOSIS

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WHO WE AREĀ 

U.R. Our Hope is a registered 501 (c)(3) non-profit organization that assists individuals and their families on their journey to diagnosis,or helps them navigate the healthcare system with a rare diagnosis. Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing. We assist families in the Austin area, and throughout Texas, the United States and beyond.

With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 rare disease and the average journey to diagnosis is SEVEN YEARS!! Many of these disease are rapidly progressing and some individuals cannot afford to wait seven years. Sadly, many children do not live to see their 5th birthday and their families are left struggling for answers and fear of the future for other children. It is imperative that we help these families find answers quickly and efficiently.

WHAT WE DO

Provide gas/meal cards to families traveling for medical appointments
Provide meals during hospitalization or times of crisis
Help with travel and lodging for medical appointments
Help with burial costs and arrangements for families who lose a child
Connect families with super-specialists to treat rare diseases and symptoms
Help families apply to some of the nations top research programs
Maddy

BOARD OF DIRECTORS

To learn more about the women of U.R. Our Hope, please visit the About us page.

S P O N S O R S

Thank you to our community sponsors for their support throughout the year