Ready, Set, Rare!

Support Team U.R. Our Hope in the Austin Marathon

Marathon: Sunday, Feb 16, 2025

We are excited to have been selected once again as an Austin Marathon Gives charity partner for the 2025 Austin Marathon.

Support Team U.R. Our Hope by running the 5K, Half Marathon, or Full Marathon. Select U.R. Our Hope as your Team upon registration.

We also need volunteers to help with our hydration station. We will be responsible for setting up and running one of the water stations along the course. You will help us hand out water and energy drinks to runners along the course. Time will be approximately 6am to 11am.

Wrap Party: Sunday, Feb 23, 2025

Join us as we kick off Rare Disease Week and Celebrate those who ran for Team U.R. Our Hope in the Austin Marathon!

Sunday, February 23, 2025 | 2pm to 5pm

Chez Zee American Bistro 5406 Balcones Dr Austin, TX

This event is family friendly with music, cocktails, hors d’oeuvres, & a silent auction benefitting U.R. Our Hope. Tickets are $10 for adults and children are free.

Tickets on sale now at: https://urohrdd25.eventbrite.com

DONATE NOW

GET TICKETS

Run for Rare in the Austin Marathon

Lace up those sneakers and get ready to run for Team U.R. Our Hope Sunday, February 16, 2025.

Choose your distance (5K, Half Marathon, Full Marathon) and register now for the Austin Marathon and select Team U.R. Our Hope at sign-up. All participants who join our team will receive a U.R. Our Hope race shirt!

Volunteer for the Austin Marathon

Running not your thing? We get it! Sign up to join our Volunteer team as we support and cheer on runners on the day of the event. We need 30-50 volunteers so grab a group of friends and support U.R. Our Hope and the Austin Marathon! We will be in charge of setting up and running one of the hydration stations along the route. This means we will be filling up cups of water and handing them out along the course.

We recommend volunteers be at least 15 years old. Younger volunteers may attend, but MUST be accompanied by a parent.

Volunteer Assignment:

Mile 13 – Hydration Station
Dobie – 2021 Guadalupe St
6:30 am – 11:30 am

Donate to our campaign

DONATE NOW

You can also support our efforts by donating to our Austin Marathon Gives campaign! All money donated will be sent to U.R. Our Hope to support our outreach and family support programs.

What we do

U.R. Our Hope is one of the only organizations in the country assisting patients on the journey to diagnosis and continues to support them beyond. We assist families in finding answers and critical treatment plans.

Gas/Meal Cards – we provide gas/meal gift cards to those traveling for medical visits to see doctors specialized in their conditions or best fit their needs
Research Programs – we help to enroll individuals in some of the nation’s top research programs to find a diagnosis, such as the NIH Undiagnosed Diseases Program and TGEN
Crisis Support – during hospitalization or times of crisis we provide respite, meals, emergency lodging, and support for burial costs
Family Meetings – local families gather each month to connect and spend time with others to network, share resources, and simply offer support to others who share the journey

Our Impact

We have over 75 active families and continue receiving referrals daily. Our families are concentrated in Central Texas, but our reach extends across 10 different states and at least 5 other countries. We have helped these families find a diagnosis or make significant progress in their diagnostic journey.