Hope for the Undiagnosed and Rare at any age or stage PO Box 50152 Austin, TX 78763
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vanessa@urourhope.org
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November 26, 2018By U.R. Our Hope

U.R. Our Hope

U.R. Our Hope is a registered 501 (c)(3) non-profit organization that assists individuals and their families on their journey to diagnosis,or helps them navigate the healthcare system with a rare diagnosis. Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing. We assist families in the Austin area, and throughout Texas, the United States and beyond.

Undiagnosed Documentary



Undiagnosed: Medical Refugees is the untold story of the millions of people just like you whose lives have been devastated due to unknown or unsolved illnesses. What understanding more about the predicament of children and adults in this difficult situation could offer to the future of medicine is astounding, yet this population remains virtually ignored. These people exist as medical refugees in a modern health care system, living in a constant state of unknown.

Donate Today

Support our families and Make a donation via our secure PayPal page now.

Connect With Us

Recent Posts

  • A Year of HOPE
  • Thank You for an Incredible 6th Annual Evening of Hope!
  • After 9 Years, Undiagnosed No More
  • Announcement: 5th Annual Evening of Hope Gala
  • Support U.R. Our Hope This #GivingTuesday

U.R. Our Hope assists families on the journey to diagnosis and helps them navigate the healthcare system with a rare diagnosis.

ABOUT US

Recent Posts

  • A Year of HOPE

    November 26, 2018
  • Thank You for an Incredible 6th Annual Evening of Hope!

    November 13, 2018

Instagram Photos

urourhope

Non-Profit based in Austin, TX serving families in Central Texas and beyond with family members who have Undiagnosed and Rare Conditions.

Instagram post 2191101309129987425_2273984849 Thank you to each and every one of you who has donated today! We are only $200 to our goal. Can you help us? Share and invite your friends to support our Giving Tuesday Fundraiser. Link in bio! ******************* U.R. Our Hope assists individuals on the diagnostic journey at any age and any stage. We love our babies, but our adult patients are just as important and in need of our help! 
Adult undiagnosed patients are often misdiagnosed and have greater difficulty accessing adequate testing and treatment options. In some cases, adults receive a psychiatric diagnosis without further examination. We aim to connect children and adults to specialists who will look beneath the surface to help find answers and treatments. 
Donate for #GivingTuesday to support an adult on their diagnostic journey: facebook.com/donate/572433573514952/10156781943541586/
Instagram post 2190951120868141263_2273984849 WOW! We are blown away by the support we have received so far! We've almost met our goal and with your help we can get there before the day is done.

Our monthly family meetings allow parents to network and share their stories with one another. Though they all have different diagnoses, there are many shared experiences which allow families to make lifelong connections and empower one another. 
Donations from #GivingTuesday help support these connections by allowing us to continue planning meetings and activities to get our families together. With your donation we can offer these meetings at little to no cost to our families. 
Give today: facebook.com/donate/572433573514952/10156781943541586/ #linkinbio ·
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@givingtuesday #undiagnosed #rarediseases #rarediseaseawareness #findyourtribe #austin #austintexas #austintx #texas #austincharity #austinnonprofit
Instagram post 2190882822147051182_2273984849 After 9 years of searching for answers, Tyler received a rare diagnosis of Joubert Syndrome. U.R. Our Hope has been on the journey with Tyler and his family over the last several years. 
Through our partnership with GeneDX, a genetic testing company, the family was able to finally receive Whole Exome Sequencing in November of 2016. Whole Exome Sequencing (WES) is one of the most advanced genetic tests currently available, however, due to cost and insurance struggles it is one of the most elusive tests for families. 
As a partner, GeneDX was able to work with the family’s insurance to obtain coverage, minimize out-of-pocket costs, and ultimately find a diagnosis.

Your donations continue to support families like Tyler's as they travel for multiple medical visits and help offset costs of uncovered genetic testing and specialist visits.

Thank you for supporting us this #GivingTuesday: facebook.com/donate/572433573514952/10156781943541586/ #linkinbio
Instagram post 2190769890100922531_2273984849 For this #GivingTuesday, we invite you to support those living with undiagnosed and rare diseases through a donation to U.R. Our Hope! 
With the medical advancements and technology available to us today, it is hard to believe that anyone could live without a diagnosis, but this is a reality faced by many of our families and countless others across the world. There are currently over 7,000 identified rare diseases and the average journey to diagnosis is SEVEN YEARS!! Your donation directly supports families searching for answers and can help expedite the diagnostic journey. Thank you for your support! ·
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#givingtuesday #undiagnosed #raredisease #support #advocacy #austintx #austin #atx #austincharity #austintexas #austinnonprofit #linkinbio
Instagram post 2178737190062214947_2273984849 What a wonderful afternoon dancing with our new friends at Hope House 💃🏽🕺🏻
Instagram post 2162028256727303215_2273984849 Keeping the party going with our kiddos for our Hope Hop Dance Party with the children and adults of Hope House. Looking for a couple sponsors to help cover food and entertainment. Contact us if you're interested!
Instagram post 2162010753720622311_2273984849 We tried something new this year and it was a hit! Thank you @casinoknightsinc !
Instagram post 2162009160992284671_2273984849 #tbt Still revelling in the incredible support from our sponsors for the 7th Annual Evening of Hope last month. We're so incredibly grateful to you all for your sponsorship and ongoing support. ✨ News on our 2020 gala coming soon! ✨
Instagram post 2162006237235361476_2273984849 #tbt to our 7th Annual Evening of Hope Gala last month! So much laughter and joy supporting our babies 💖 Stay tuned for details for the 8th Annual Evening of Hope in 2020!
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Contact Info

If you or your child are in need of assistance on the journey, please fill out our contact form or email our medical liaison.
Email: mary@urourhope.org

Copyright 2018 U.R. Our Hope. All rights reserved.
  • Home
  • About Us
    • Our Families
  • Cookbook
  • Events
    • Evening of Hope Gala
  • Media
  • Donate
    • #GivingTuesday
  • Resources
    • Medical Flights
    • Finding a Diagnosis
  • Blog
  • Contact Us