Upcoming Events

No January Meeting

February Family Meeting

Rare Disease Day Celebration – Sat Feb. 24, 2018 1pm – 5pm – Whitestone Brewery Cedar Park


Join us for our annual Rare Disease Day Celebration! This year’s event will be held Saturday, February 24th at Whitestone Brewery in Cedar Park, TX from 1pm to 5pm! This will be a family friendly event, as always. Entry is FREE, but this is a fundraiser, so we will be accepting donations, there will be a donation wall, a raffle, and some activities will be by donation. Tryst food truck will be present as well. $1 from EVERY pint sold will be donated to U.R. Our Hope, so grab some friends and cheers for RARE!



Stay tuned for more upcoming family meetings and events!






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Thank you all for your continued support!