Upcoming Events

February 2017 – Strikeout Rare – Family Meeting and Rare Disease Day Event – Saturday, February 25, 2017

Join us for our Rare Disease Day Event on Saturday, February 25th from 12pm to 5pm at Third Base in Southpark Meadows! Enjoy family friendly games, music, great food and drinks. Music entertainment provided by Austin’s Favorite DJ, DJ 2DQ!

Event Sponsored by Whitestone Brewery – 100% of proceeds from Whitestone Brewery Purchases support U.R. Our Hope


Rare Disease Day 2017 – February 28, 2017

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.





Stay tuned for more upcoming family meetings and events!






 Past Events
















Thank you all for your continued support!