Monthly Archives: June 2013

UMDF Family Meeting with Dr. Cohen

n conjunction with the Annual Texas Parent to Parent Conference in San Marcos this July, we are excited to have Dr. Cohen coming in to speak with families! Dr. Bruce Cohen will be presenting on Mitochondrial Disease and there will also be time for a Q&A Session where parents will be able to ask Dr.

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Survey on Parental Uncertainty

We have recently been contacted by Ellen Mcnamara, a Genetic Counseling Student at the Johns Hopkins and National Human Genome Research Institute Genetic Counseling Program. This student is conducting a survey to research her thesis about the uncertainty parents face when raising a child with an undiagnosed medical condition. For this survey, parents who have

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